Madalyn Neff

About Madalyn Neff

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So far Madalyn Neff has created 23 blog entries.

[Guest Post] A Blessing and a Curse: Our Story About Cancer Treatment and Survivorship

My husband and I will never forget the day we were told that our 15-year-old son, Steven, had stage IV osteosarcoma (bone cancer). It was every parent’s nightmare—and the start of an emotional rollercoaster ride. Our response to the diagnosis was typical. We were numb and filled with fear. Ten months later, after rigorous chemotherapy, [...]

2019-03-26T19:58:13-04:00February 5, 2019|General|

[Blog Post] Risk of Glaucoma Varies with Race, Ethnicity

Each year at this time, the U.S. marks National Glaucoma Awareness Month to get Americans to focus on the disease that’s the leading cause of irreversible blindness. More than 3 million Americans have glaucoma, and many of those affected don’t even know it. That’s because you can lose up to 40 percent of your sight [...]

2019-04-16T10:00:22-04:00January 22, 2019|General|

[Guest Post] Diversity in Clinical Trials: Preparing Physicians to Make a Difference

The U.S. has become increasingly diverse, yet that diversity is not reflected in the clinical trials that play a key role in which new medicines are approved and, ultimately, prescribed to the general public. Because of this underrepresentation, much of what we know about new medicines—including their effectiveness and potential side effects—might not apply to [...]

2019-03-26T19:58:32-04:00January 8, 2019|General|

[Blog Post] Don’t Let Past Wrongs Prevent You From Participating in Today’s Research

For 40 years starting in 1932, the U.S. government conducted the “Tuskegee Study of Untreated Syphilis in the Negro Male,” one of the worst examples of abuse in research history. Outrage over the treatment of the Tuskegee participants continues to this day—as it should. But it should not prevent African Americans from participating in clinical [...]

2019-01-08T17:05:00-04:00January 6, 2019|Blog Post|

[Guest Post] The Short-Term Impact of Right-to-Try: Confusion and Raised Expectations

Earlier this year, to much fanfare, President Trump signed the “right-to-try” legislation enacted by Congress with the purported goal of helping terminally ill patients who want to try experimental drugs. The issue has captivated the American public, and the right-to-try law has been hailed as a legislative success. But how does that square with reality? [...]

2019-03-26T19:59:36-04:00December 4, 2018|General|

[Blog Post] Doing Our Part to Advance Health Equity

Everyone deserves a fair opportunity to live a healthy life. That’s our goal—health equity for all. Yet many Americans are more likely to suffer from diseases or medical conditions because of race, ethnicity, age, gender, or social or economic factors. These disparities take a significant toll throughout the lives of those affected. We see the [...]

2018-12-07T13:16:47-04:00November 9, 2018|General|

[News Release] Morehouse School of Medicine Awarded $200,000 to Train Minority Physicians for Recruiting Minorities in Clinical Trials

Funded by Clinical Research Pathways, the New Program Intends to Fill a Gap in the Percentage of Minorities Who Participate in Clinical Trials ATLANTA, September 20, 2018 — Morehouse School of Medicine (MSM) will launch a program specifically designed to increase the number of African American, Latino and other minority patients in clinical trials, in an effort [...]

2019-04-16T10:03:35-04:00September 20, 2018|News|

The evolution of gene therapy for rare disease patients

(The following guest post is from Andrew McFadyen, who recently joined the Clinical Research Pathways Board of Directors.) Hope is here, if only we can access it The evolution of gene therapy for rare disease patients Patients and families affected by rare diseases define hope in a very different way from the dictionary. We are [...]

2018-09-10T10:13:12-04:00August 23, 2018|General|

Patients’ Guide to Clinical Trials and Expanded Access

When someone is diagnosed with a serious or life-threatening illness and they have exhausted standard treatments, it's important to know that there are still options. Two important options are clinical trials and expanded access to experimental products. At Clinical Research Pathways, our role is to help individuals learn about clinical trials and help guide them [...]

2018-09-27T20:06:24-04:00August 8, 2018|General|
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